LIVING & CARING

A Guide for Carers and People with Parkinson's

By: Ann Andrews & Jennifer Dann

ISBN: 9781869665272
Format: Paperback
Page Extent: 272 pages
Book Size: 210 x 145 mm (Height x Width)

This book is for people with Parkinson’s and the people who care for them. It draws on the personal experiences of over forty people living with Parkinson’s in the hope that sharing their journeys may help readers navigate theirs. Living and Caring is designed to be read once Parkinson’s has progressed to a point where the concept of ‘care’ needs to be considered in all its complexity and offers readers the opportunity to share the experiences of both sufferers and caregivers and their reactions to a wide range of challenges.

By covering the care partnership from both sides of the caring coin, readers can understand things from each other’s perspectives and hopefully work together on solutions that work for each unique relationship and situation. Those Parkinson’s sufferers and carers were interviewed separately and their quotes are anonymous so that both could be totally frank about their feelings, struggles and insights.

It is organised by subject so readers can dip into topics as they become relevant, as the progression of Parkinson’s varies so widely from person to person.

Some of the topics covered in this book

  • Diagnosis and its consequences
  • How Parkinson’s affects the ability to work
  • Physical effects and daily life
  • Cognitive changes
  • Medication and treatment
  • Exercise and other therapy
  • Getting out and about
  • Dealing with depression
  • Flying solo
  • Involving the family
  • Avoiding isolation
  • Sleeping and intimacy
  • The power and control relationship
  • Coping with difficult feelings
  • Adaptations to the home
  • Time out for the carer
  • Overnight respite care
  • Coping with dementia
  • Issues with incontinence
  • The retirement village decision
  • The rest home decision
  • Managing the end of life
  • Reflections on caring

Testimonial's about this book

"This book is a valuable resource for those that care. It shows that we are 'in this together' and demonstrates the vital role that carers play in the lives of people living with Parkinson's"
- Steve Sant, CEO Parkinson's Australia

"This is a marvellous book, and there is much in it for people with Parkinson’s and their families."
- Barry Snow, Neurologist and Chair of the Neurological Foundation of NZ

"…This is a book that will certainly connect with and help many people in Parkinson’s communities around the world."
- Deirdre O’Sullivan, Chief Executive Parkinson’s New Zealand

Sample Chapter

Author: Ann Andrews

Interviewed the sufferers of Parkinson’s. She worked as a writer, television and theatre producer, researcher and teacher before being diagnosed with Parkinson’s in her fifties.

She wrote two books on the subject, Positively Parkinson’s and Grandma’s Brain and intended Living and Caring to be a final work in the trilogy. Anne passed away in 2017 and Living and Caring is being released posthumously.

Author: Jennifer Dann

Interviewed the carers in the book. She is an award-winning journalist with more than 10 years’ experience in newspapers and radio. She is passionate about the work of unpaid carers having grown up seeing her mum care for her severely intellectually disabled sister

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